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Table 2 Respondents’ preferences on the disclosure of risk information in the scenario of moderate CRC risk

From: Public support for healthcare-mediated disclosure of hereditary cancer risk information: Results from a population-based survey in Sweden

Group Subgroup   As relative: Want to receive information about a potential hereditary CRC risk Chi-square testa As proband: Want relatives to be informed about their potential hereditary CRC risk Chi-square testa
    Yes No NA p-value Yes No NA p-value
Sex Women N 422 39 0   430 28 3  
% 91.5 8.5 0   93.3 6.1 0.7  
Men N 449 65 2   451 52 13  
% 87.0 12.6 0.4   87.4 10.1 2.5  
      0.04*     0.02*
Age 18–39 N 253 26 2   255 17 9  
% 90.0 9.3 0.7   90.7 6.0 3.2  
40–59 N 291 34 0   291 29 5  
% 89.5 10.5 0   89.5 8.9 1.5  
60–74 N 327 44 0   335 34 2  
% 88.1 11.9 0   90.3 9.2 0.5  
      0.58     0.34
Educationb Low N 348 43 1   349 33 10  
% 88.8 11 0.3   89.0 8.4 2.6  
Middle N 278 34 1   280 28 5  
% 88.8 10.9 0.3   89.5 8.9 1.6  
High N 240 26 0   246 19 1  
% 90.2 9.8 0   92.5 7.1 0.4  
      0.87     0.69
Country of birthc Sweden N 806 91 2   811 75 13  
% 89.7 10.1 0.2   90.2 8.3 1.4  
Other N 57 11 0   61 5 2  
% 83.8 16.2 0   89.7 7.4 2.9  
      0.18     0.98
Place of residence City N 674 81 1   686 59 11  
% 89.2 10.7 0.1   90.7 7.8 1.4  
Rural N 194 22 1   192 21 4  
% 89.4 10.1 0.5   88.5 9.7 1.8  
      0.92     0.45
Childrend Yes N 565 71 1   573 55 9  
% 88.7 11.1 0.2   90.0 8.6 1.4  
No N 300 32 1   302 25 6  
% 90.1 9.6 0.3   90.7 7.5 1.8  
      0.53     0.64
Single householde Yes N 150 19 1   152 14 4  
% 88.2 11.2 0.6   89.4 8.2 2.4  
No N 705 83 1   714 65 10  
% 89.4 10.5 0.1   90.5 8.2 1.3  
      0.89     1.00
Personal cancer historyf Yes N 76 7 0   80 3 0  
% 91.6 8.4 0   96.4 3.6 0  
No N 773 90 1   783 76 5  
% 89.5 10.4 0.1   90.6 8.8 0.6  
      0.70     0.13
Total   N 871 104 2   881 80 16  
% 89.2 10.6 0.2   90.2 8.2 1.6  
  1. Shows respondents’ detailed characteristics versus reported preferences on the disclosure of risk information when answering as a proband, or an at-risk relative, belonging to a family with a moderately increased hereditary risk of CRC (10% lifetime risk)
  2. aChi-square tests compared proportions in the different groups
  3. bEducation levels clustered into Low (some elementary or high school education), Middle (post-secondary education < 3 years) or High (3 years of post-secondary education or more)
  4. cSelf-reported country of birth with response options; Sweden, Europe or Outside Europe
  5. dAs per response to the question; “Do you have children?”
  6. eHousehold status “single” corresponds to residing alone currently
  7. fHaving a current or past cancer diagnosis classified as yes, no previous or known cancer classified as no.
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